There are more than 7,000 rare diseases*
72% are genetic diseases*
A disease is rare when it affects fewer than 1 in 2,000 people*
300 million people worldwide are living with a rare disease*
50% are children; 30% will not live to see their 5th birthday**
80% are affected by approximately 350 of the 7,000 rare diseases**
The average time it takes for a person with a rare disease to receive an accurate diagnosis is 8 years***
Approximately 95% of rare diseases have no treatment*
Imagine the possibilities.
The determined persistence of persons diagnosed with a rare disease. And their caregivers.
The support and the drive of rare disease advocacy groups.
These are the rare disease heroes. They inspire hope. They inspire action. They inspire results.
They are the very vocal minority and, year over year, their collective voice increases in power and momentum.
Their calls are answered by countless life sciences organizations, committing their expertise to the discovery of innovative therapeutic avenues for persons diagnosed with a rare disease.
And we are the passionate promoters who relish our role as marketers with purpose.
We are propelled by the missions of these persons, their caregivers, the advocacy groups, and the life sciences organizations. And, while we are extremely proud of the inspired work we do with all of our clients, there is something special about being a part of this calling.
The motivation is not to feel good about ourselves, but to know that we’ve helped make a difference in the lives of these persons who are living with a rare disease. Ever determined. And ever hopeful.
- The FDA has approved 770 orphan drugs since the passage of the Orphan Drug Act****
- Currently, there are 560 medicines in development for the treatment of rare diseases****
Rare Disease Day.